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Ulcerative Colitis
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chief1403
Posted 1/21/2010 23:01 (#1034954 - in reply to #1034435)
Subject: RE: Ulcerative Colitis


s.e.mn.
i have had chrones since 2003 , which is similar to u.c., i agree with everyones post , you have to find your own diet, plant toilet paper all over in vehicles etc. , for me bouncing in a tractor or truck in flames it(bleeds) i have had 7 feet of intestinte removed 3' of large and 4' of small , it is hard emototianly to , the doctor said you will make yourself crazy from feeling crumby all the time and it does, lots a a water , staying away from heat of the summer and alchohol are also tough , i stay away from it if i can , if i "fall off the wagon" i take i think its called imuran for 11 days to prevent fistules

from freinds i know the remicade is as close to a miracle as you can get, for me it was the $8000 a dose every two months that scared me and being open to picking up any cold or flu as it lowers your imune susytem , and liver function is a concern , but for some the risks are outweighed by the results
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